CHALLENGES FACED BY PATIENTS WHILST ON TREATMENT

Melanoma UK is trying to better understand challenges faced by melanoma patients on treatment and try to prioritise which of these challenges are most critical for our patient community. The following short survey is split in to three sections and although not all will apply to you, please answer what you can. We are constantly trying to enhance our patient support including the use of technology so thank you in advance of your support, Di

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SECTION 1

WHAT CHALLENGES DO/DID YOU FACE WHEN TAKING TARGETED THERAPIES? (i.e. Dosage, managing adverse/side effects, nutritional advice, psychological support etc?

From the above list what was the most challenging for you?

How do/did you deal with these challenges?

How do/did these challenges make you feel?

Are you using any digital tools to help deal with these challenges?

Additional Comments

SECTION 2

FROM THE FOLLOWING LIST, PLEASE TICK ANY OF THE STATEMENTS/ASSUMPTIONS THAT ARE RELEVANT/IMPORTANT TO YOU AS A PATIENT?

I am not clear on when to contact my Health Care Professional (HCP) for Adverse Event (AE) managementIt’s difficult to identify changes in my temperature trends (if monitoring for pyrexia)Monitoring my temperature or tracking other AEs while in treatment has/is interfering with my lifeI would like to know more on AEs and how to identify and manage themIt’s difficult getting clear explanations on specific AEs when treatments are initiated (there are so many) so not sure what to monitorI am afraid of reporting AEs because I may have to suspend or stop treatmentI am not clear on when I need to contact my HCPs

Additional Comments