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At Melanoma UK, we believe it is vital to proactively use evidence in our advocacy work.
An increasing proportion of patients are highly sophisticated in their research and understanding of evidence, and we are matching this movement. Examples include participation in health technology appraisal meetings (NICE and SMC), presenting clinically validated information on our website, authoring publications from our Melanoma UK digital registry, engaging with our own panel of medical experts, and using our registry data to support patient-centric initiatives, such as targeting travel grants where they are most needed.
Ultimately, all these initiatives are designed to benefit and support patients, which has been Melanoma UK's mission since its foundation.
At Melanoma UK it is our challenge and desire to give patients and their families much needed support during the very difficult times faced upon diagnosis.
Meet Jonathan Herron. He's the reason we're here. A young man from Northern Ireland. Kind, funny and courageous beyond all comprehension, he sadly passed away in May 2008.
Doctors collect statistical information about the different types of cancer and prognosis. Prognosis is the likely outcome of your disease and treatment. In other words, your chances of getting better and how long you are likely to live.